I don’t expect this post to be very long, because we just got home about an hour ago and I am in extreme pain. I can hardly even put weight on my left leg and it is refusing to bed. That said the drive and stress may have been a nightmare, but in the end the day was good great.
I very impress with Dr Guise. She is very knowledgeable, did a great job explain things to me, and maybe even more important not only had some great ideas on what can be done to help me, but she agreed to do it. It turns out that the diagnostic I had been giving was not 100% correct. It is not Scrotal Lymphedema (a.k.a Scrotal Elephantitis), but another form of Lymphedema which sadly the name escapes me. However, it they are very much related.
So what is going to happen? Right now the only solution is some lifestyle changes and major surgery. If everything goes has it tentatively planned I will have surgery some time in the end of February or early March. Right now the team at Froedtert has to do a lot of planning and I will need to meet with several other doctors over the next couple months. The surgery will be between 5 to 6 hours long and I will be in the hospital for at least 5 to 7 days before I will need to to the a physical therapy and wound center (a lot like the one I went to two years ago.) There is also a possibility of a second surgery to fix my screwed up gastric bypass.
I am both excited and freaking out over this. It is a very dangerous surgery, but if I don't do anything I won't be around for much longer.